I keep remembering Dad’s wedding reception
when Grandpa lost the word lily.
My hand out pointing to one of the centrepieces,
white flowers spilling over onto the table like wine.I had the garden in my head
when I asked him to name them.
The garden out behind the bungalow he built
that he always kept so neat. I saw him on his knees
in blue overalls, pruning. I saw him pretending
not to mind as a football went crashing
through the fuchsias. Then I saw his eyes,
panicked and dark as the hole where a word should be,
some kind of —and my dad said lily and this is how we manage.
—Joshua Judson (2020), via today’s installment of Pome.
Dad keeps the word lily. I keep the sunlight and the grey squirrels
cascading across the lawn on Sunday mornings.
And together we remember everything.
Tag: dementia
On a call with some of the folks from the Wayward community the other night, someone shared a conversation they’d had with their therapist about emerging into 2021. PTSD, the therapist pointed out, doesn’t generally rear its head while soldiers are on the battlefield. It comes later, when things are supposedly “safe” or “better” and everyone around us is celebrating or relaxing and we’re only just beginning to experience the full impact of what we’ve been through.
It hit me like a pile of bricks.
I feel so far away from my creative self right now. The only thing I keep finding comfort in is learning that a lot of other friends are in the same boat—that maybe a majority of us are actually grieving the loss of whatever creative spaciousness or clarity we’d managed to eke out in the solitude of Quarantine. Or maybe we’re all just braced for the next wave of closures and infections and losses, or finally feeling the full weight of the closures and infections and losses that have already come and gone.
My first family COVID deaths happened in quick succession within the last two weeks—far past the peak of the Pandemic. What does that mean? How am I supposed to feel? They lived in another country, separated by oceans and continents and the 17 years since I saw them last in person. But they were family—a community I struggle to feel connected to at the best of times, even though I yearn for it desperately. I’m vaccinated. My parents are vaccinated. Nothing quite like thinking you’re “safe” and then realizing grief can still snake its way into your circles, no matter the care you take.
I’m thinking, too, about the way I keep brushing off this mental and creative slump in conversation, waving my hands and explaining to friends that “it’s just a phase” and “things will feel better as soon as I get stuck into my next project.”
“This always happens,” I say. “I always pull through.”
But something I didn’t account for is living in house alongside my dad, one of my primary sources of creative inspiration and cheerleading growing up, who genuinely has lost contact his creative self. Dementia is not the seasonal cycle that I usually comfort myself with when I think of the ebb and flow of creative embodiment. It’s a far darker and more linear decline. It makes the threat of permanent loss in these low tide seasons feel more real.
It’s not to say that I’m over here worrying about imminently losing all my marbles. More that…I don’t know. Maybe that I haven’t been making enough space for the enormity of everything. When I make light of this season—either because I’m afraid of it, or embarrassed that it’s happening to me, or something else—I rob myself of the chance to feel my way through into whatever comes next.