Still chipping away at this quilt I started on a whim in the spring.
Tag: grief
I wish I could be in the Pacific Northwest to attend one of these screenings for Dark and Tender, a film exploring the work of Aaron Johnson and the Chronically UnderTouched (CUT) Project.
From their website:
The Chronically UnderTouched (CUT) Project is a movement supporting People of the Global Majority — people of color — to recover healthy, nourishing, platonic touch in a culture that, in the United States, denies it at every turn.
Born out of the development and tracking of the Chronically UnderTouched trauma story, the CUT Project develops accessible practices — deep listening, song, access to nature — as antidotes to the Black Brute archetype. […] Tender, thoughtful touch and holding, to the Black male body, is so dangerous to white supremacy that they use all matters of violence to erase this practice.
I’m watching my dad decline and trying to stay present for the version of him that remains and always, always thinking about grief in this country. How we drown it, gloss over it. We’re starved of the emotional technology that helps us process any of this. Our rituals fall so short. Aaron’s work illuminates the ways this deprivation disproportionately impacts people of color, making it all the more timely.
These days my ears perk up when someone speaks with the candor that comes from living through immeasurable loss. I find myself gravitating to places I never would’ve called home before: grief circles, mortality workshops, books and books and books about mourning, death, and ceremony.
Touch is a cornerstone of survival in this season. The older I get, the more deeply I know it. I know it because I want it. I want lingering hugs that last a full breath. I want leonine forehead to forehead greetings. I want a hand on the shoulder, a back scratch, the reassuring weight of leaning into someone side by side. I want to feel us shoring each other up, reminding one another that we are warm and breathing and alive, even as we hold everything that breaks us.
Exactly one year before I started drafting this post (which then languished for a little while, so technically now it’s more than a year ago, but whatever you get the idea) I wrote a short thread on Twitter about feelings and impermanence. I dug it up because I came across this photo and couldn’t remember what the hell I was doing that led me to group these little slips of paper in this kind of configuration. I’ve copied the thread verbatim below.
“Did an exercise in therapy this morning where my therapist asked me to list all the feelings running through my brain/body on bits of paper. Spent the rest of the session sorting them into affinity stacks while we talked.
It got me thinking about Chronic Feelings vs. Current Feelings. These are current, influenced by the hospital visit this week, the slow return to stability after a trauma, my anxiety about understanding my family’s finances, an impending trip, a disappointing career decision.
The Chronic Feelings are things like anticipatory grief, professional burnout, climate anxiety, hatred of capitalism, Pandemic Fatigue. The stuff we’re all collectively steeping in that constitutes a full emotional plate on its own.
But to try and be present with the feelings in my body right NOW requires a different sort of lens. It requires understanding that all of this passes.
I get reliably down most afternoons. Eating lunch triggers a slump of despair and exhaustion that isn’t the end of the world. It’s rare that I feel dreadful while I’m having my tea and scrawling pages into my journal outside in the sun first thing in the morning, so whatever’s coming for me today will, at the very least, abate for a half hour tomorrow. This helps to remember.
I have many weird/bad feelings about Twitter but also I think a lot about the people I know on here who’ve been generous enough to share their complex emotional stuff over the years. Folks grieving in public, folks naming anxiety, folks sharing their affirmations. It’s important.
A big cornerstone of how I’ve carried myself online for years has been an emphasis on sharing clear, proactive, hopeful things. Sometimes I fear this season of my life is going to break that, because it’s HARD. But I do think there are still ways to approach it with that ethic.”
Weird to still be chewing on the same stuff a year later. Weird to still be in an endless rollercoaster of absurdity and grief with my dad. Weird, also, to see the cadence of tweeting transposed onto my blog. Writing like that doesn’t belong here! But also I engaged in it for so many years on that platform. Every container nurtures its own syntax.
A friend asked if I’d signed up for Bluesky and the wave of exhaustion I felt in response washed the flesh clean off my bones. It’s not just that Twitter seems to be continually on fire these days, it’s the broader truth that social media feels hollow to me now. The ADS! There are so many ads. Why did I ever put up with a space that was so aggressively trying to sell me things at every turn? (The answer is that it was giving me the Good Brain Chemicals when I interacted with people I care about, but these days I don’t post enough to get notifications, so I’m trading my attention for NOTHING! No wonder the shine has worn off.)
I’ve been thinking about this installment of Holly Whitaker’s newsletter ever since I read it a couple weeks ago. I haven’t even dug into the links, but the dislocation theory of addiction latched onto my brain stem and has yet to let go.
Our modern social arrangement, Alexander argues, means that we have to sacrifice “family, friends, meaning, and values” in order to be more “efficient” and “competitive” in the rat race. In this framework, addictive behaviors are adaptive responses meant to fill that void of meaning and purpose. Using substances can provide a temporary sense of community (with other users), purpose (to acquire the substance), and meaning (feelings of euphoria or calm from using the substance). Substance abuse and addiction help to fill the gaps in meaning and purpose left by modern society.
None of this is news to me, really, but the articulation slotted something into focus. Reflecting on consumerism as an addiction (or maybe….everything as an addiction?) this month has been a valuable touch point.
And then here I am hitting go on a reprint of my graphic novel! A product I must then sell! A product I might even sell on the premise that it will make people feel less alone! HNGNNNGNNHHGHHH.
(I was going to expand on stuff in that tweet thread in this post too, but I got sidetracked and now it’s time to make my dad his breakfast so I’m hitting post because there are no ads here and nobody needs to buy anything and it’s one of those days where I want to move to the woods and eat grubs for the rest of my life so byeeeeee)
(Previously from this spot: 2022, 2021)
It’s been hard to get out of the house recently.
Our neighbor of 31 years died in February, followed by my godfather in March. They each meant very different things to me, but both occupied an archetypal permanence that’s hard to reconcile with death. And all grief is linked, isn’t it? This thread pulls on that one and so on and so on until the tapestry unravels and you’re left holding a mess of snotty string.
The last two weeks of my wall calendar are utterly blank. I’ve learned to read these gaps in my paper trail as markers of total emotional exhaustion (although sometimes they correlate with the thrill of a new relationship). In this case, I know the data is missing because I’ve been too tired to track whether I wore my mouth guard, too forgetful to know if I attended a Zoom meeting, too frazzled to write Morning Pages. Too much. Too much.
Last night I finally turned my phone all the way off and threw it behind the bookshelf. I buried my laptop in the couch cushions. I hid my iPad in the closet. I hucked all this technology out of my room because I was drowning in it, trying to get away from everything.
Instead, today, I walked. Not for long, but enough to remember what my legs are for. Enough to see how everything has changed from storm after storm of rich rainwater filtering into the hillsides since January. You can stick a finger in the earth and water pours out. Every divot in the trail is a spring.
We’ve passed the equinox. Life is coming back.
I stopped off to download my Twitter data yesterday and caught a notification from this lovely thread that Brendan had put together sometime around Christmas:
Down among the thinkers and tinkerers and connectors, said the notification, he’d written some very sweet things about me. It came as something of a surprise.
It was a mention of “unselfing” by Helen Macdonald that drove me back to blogging in 2020. Since then I’ve heard it surface in other places. Annie Dillard describes it at length in Pilgrim at Tinker Creek, saying “[…] I have often noticed that even a few minutes of this self-forgetfulness is tremendously invigorating. I often wonder if we do not waste most of our energy just by spending every waking minute saying hello to ourselves.”
Both women have their fingers tangled up in something true.
I feel it when I’m driving the highway, lost in dark thoughts of mortality, only to abandon every thread for a glimpse of a hawk on a telephone pole. The moments before sleep when a barn owl’s screech pulls me out of my own body. The day I left the house in a foul mood to pace the gravel drive, stomping up and down until the lifeless body of a hummingbird stopped me short and lifted the needle of my displeasure.
I know the value of unselfing more than I ever have before, living here, doing this work, marinading in the near-depth of near-death.
But this thing that Brendan gave me feels somehow the same—an inverted twin sensation: being reminded out of the blue of Who You Are (or Were) Perceived to Be. It comes to me in a season where I’ve stopped saying hello to myself quite so often, possibly to the point of forgetting who that self even was before now. I say hello to death, I say hello to loss and calibration and labor and tending, but I don’t always say hello to me.
And the minute I type that I’m thinking of Sarah Ruhl, and these lines from the first essay in her book 100 Essays I Don’t Have Time to Write:
I’ve written about that line here before, and the mantra repeats in my head as I walk through the meadows near my house.
All right, then, annihilate me; that other self was a fiction anyhow.
All right, then, annihilate me; that other self was a fiction anyhow.
All right, then, annihilate me; that other self was a fiction anyhow.
And yet, and yet, and yet…
I miss her. I miss that Lucy. And so Brendan’s tweet feels like a kindness. Perhaps the kindness that social media kept drawing me back in with for all those years: a whole realm of people who could look at every passing thought and doodle and hard-won victory and low moment and interview and blog post and reflect back someone cohesive and true.
True only to what I’d shared, maybe, but still.
Something I couldn’t see with my own eyes.
Something the hawk sees when it’s looking back at me.
(All these quotes are from A Handbook of Disappointed Fate, Boyer’s collection of essays on poetry, illness, avant-garde creative movements, mutual aid, reading, and crushes.)
After I got sick in late summer 2014, I followed U.S. poetry only from afar, as if walking by a shop window and glancing at it through a glass, even the most necessary uproar too expensive to my health for me to even think of buying […]
This rang so true to how these last two years have changed my relationship to the comics industry—a space I never felt particularly enmeshed in to begin with. Every discussion of online drama or publishing upset or new technology costs far more than I have capacity or inclination to spend. A relief, in some ways, to have that decision taken away from me.
My time in the time of illness has been unmeasurable or ir-measured or a-measured. Yet despite how this time can no longer steadily or predictably submit itself to clocks and calendars, for survival’s sake I still have to try to measure it.
Underlined this because I’m doing my annual workbook on the couch right now, surrounded by a corona of calendar pages and journals and sketchbooks, trying to piece together the fragments of a lost year.
The harm can be studied like anything, every wept tear a textbook, every minute of shallow breathing a monograph, seven hours and fourteen minutes of a sleepless night a textbook a tedious-to-read but potentially useful dissertation on having existed.
It is not as if what is true, right, urgent, and necessary is a light, and what is harm is the darkness. They are both darkness: they are both lights.
yes yes yes yes
15. There will be a lot of sewing last year’s fragments with this year’s threads.
And also:
Poetry is revenge porn against the self by the self.
And finally:
As grim as reading has been for me, reading is not only the private amplification of the human worst. Reading is not merely escapism and militant solitude and everything shirked–that is, reading is not an act exclusive to words and books–and a person can also read the patterns of migrating birds or the lines in a soon-to-be-lover’s palm or the buds of oak trees or the damaged look in an eye or the danger headed this way or the people amassed in the streets. The world existed before books, and it always exists outside of them, and how a person should read is how a person must read, which is at least in duplicate, both always in this world and looking for another.
💛
Cross-posting from Patreon because I want to keep this stuff on my site, too. CW: this post talks about an ER visit, elder care, and grief.
Two days ago I was trying to explain to a partner how intense being a caregier is despite there not being very much “action”. My dad is stable. He doesn’t have a clear timeline. I just know that he is old, and often confused, and needs my help.
Yesterday that looked like agreeing to take him to The Farmer & The Cook, the local venue where the collage pieces we made together have been hanging for the last six weeks. That’s where I took this photo. He misses being out and about every day, greeting his public, watching people going about their business. It’s one of the things I struggle with most: I want him to be safe, and I also want him to be happy.
It was set to be a scorcher, so I made extra sure he’d had breakfast and his smoothie before we left the house, tried to get there early in the day, parked him in the shade.
But maybe I jinxed it, talking about there being no action, because ten minutes after I took this photograph he had an episode—slumped over, drooling, unresponsive. His dentures slid out of his mouth one after the other in a slow-motion horror show I’ll never forget. I kept hoping he’d snap out of it but he didn’t. Someone got me ice. I found myself wondering if his insurance would cover an ambulance. I didn’t know what to do. I called my mum to come join me and asked her to bring the walker, because we’d gotten him into the car with the walker on other occasions when he got wombly, but in this instance it was totally laughable because the man was clearly unconscious.
He was gone.
She arrived, took one look at the situation, and called 911. I just kept holding his shoulders, patting him down with ice, trying to bring him round. It is awful to feel so useless in the face of a crisis. I knew he needed to drink water but he couldn’t drink. How was I supposed to get him to drink?
He looked so small when they put him in the ambulance.
Driving the half hour to the hospital on the tail of the paramedics, there was no way to know what we were in for. Would he be paralyzed? Would he be dead? Would he remember? Would he be fine?
There’s a sick sense of relief bound up in an episode like this because we understand acute crisis. I can talk about “hospital” and “collapse” and “emergency” and people will understand—even if they’re just drawing from pop culture, they’ll understand.
But every day as a caregiver carries that load of uncertainty. It’s not as loud, so we can function, but it builds and builds. It ripples. It reminds me that it’s not just my dad whose life could change or end at any moment—it’s me. It’s everyone.
Even when nothing is happening, so much is happening.
I spent 9 hours on the sidewalk outside the hospital, waiting. It was 90º out and miserable. No waiting room privileges because of COVID. Mum had to be the one person allowed in the ED with him because she knows his doctors and medical history better than I do.
One impossibly kind nurse got me back to see him for three minutes, which wasn’t enough, but also was. I heard his voice. I saw his eyes open and smiling. I got to stroke his hair.
They kept telling us he was going to move to the hospital proper, where he’d be allowed two visitors, but when they finally did move him, four hours after that initial, tantalizing announcement, visiting hours were over. I had to stay outside.
I’m paying a lot of attention to labyrinths this year. I’d already been outside the hospital for two hours when I went to move the car and realized I’d been sitting twenty feet away from this:
I’ve stopped being surprised by this sort of stuff. I just start laughing and saying “Okay, OKAY I get it” to no one in particular.
I walked it when the sun finally went down and the temperature dropped enough to move in.
In ten minutes I’m going to drive back to Ventura to pick him up and bring him home, apparently no worse for wear. No stroke, no heart attack, just…age. Heat. Dehydration. Blood pressure. Who knows. And this makes me feel relieved and grateful and exhausted and also so angry. Because even if he’s fine, we’re left carrying the weight of how it could’ve gone. These pendulum swings of possibility.
I’m left remembering his teeth in his hat on the floor of the car, riding down the highway with us on our way to the unknown.
Shing wrote a very perfect post-mortem about their epistolary keepsake game, Remember August. It is personal and statistical all at once, just as much about the logistics of running a very unique kind of mail-based narrative as it is about the decline of once-cherished relationships. I strongly recommend reading the whole thing, but this sentence in particular hit me in the chest:
I felt a little bit like by making games like this, I was tricking strangers and friends into telling me that I would be okay.
I feel this so keenly when I listen to messages from The Right Number. Much like the handwritten letters players posted during their interaction with Remember August, the human voice carries so many layers of intimacy. The current prompt is about refuges, and people have been calling to describe, in gorgeous detail, their chosen temples and cherished landscapes. I lie in the dark and let their accents and words wash over me, one by one. A house in the mountains of northern New Mexico. A warm beach. A particular couch in a family room.
I never listen to too many at once, so there’s actually a backlog of messages I haven’t gotten to yet, but they feel timeless. There’s no response forthcoming, just the knowledge that I’ll listen to them and keep them safe somehow. And in return, they keep me safe, too.
A few rhyming pieces from this week:
1. Sarah wrote a lovely, somewhat bittersweet post about finally closing her Photobucket account, which touched on a lot of what I find difficult about maintaining an archive of one’s creative work online as an artist, rather than just a writer:
I’ve never been sentimental about my childhood homes, but I imagine this is how it feels to leave one. I invested a lot more emotion into these drawings and writings than I ever did any actual geography; it was a (virtual) dwelling and a social life and autobiography all rolled into one. My blog archive and my long-defunct website, cosy and reliable home bases for so long, foundational in so many different ways to my identity, will be floating out there in the deep web without their illustrations, like abandoned buildings with hollow windows; it feels like I’ve pressed a button that sent them instantaneously into ruin.
2. Earlier this week, Brendan linked to Wesley’s writing, which led me in turn to their exploration of How Websites Die (which, in turn, referenced Winnie’s writing, whose work I only found recently through strange, roundabout blogging connections—did you know I love this game?). Timely to see that there’s a group of people all wondering about how we can (or if we should) make these spaces more enduring. Are they even built for that?
3. All these things led to thinking about how I do know someone who, out of a sense of love and duty and grief and stewardship, ensures that Chloe Weil’s site remains online, even eight years after her death.
I think the web is full of these silent acts of affection, but they can be hard to see.
Hourly Comic Day is an annual tradition in the comics community where folks set out to draw a panel (or two, or three) for every hour they’re awake on February 1st.
It took me a couple weeks to get through finishing my pages from this year because it was a) hard to fit in inking and watercoloring and posting around caregiving, but also b) just exhausting to deal with emotionally. Still: I’m so glad I did it. In 2021 I was right on the cusp of uprooting my life in Portland to move down to Ojai and look after my dad. Now I get to have a record of what the rhythm of these days has been like, and I’m sure I’m going to appreciate it more and more as time goes on.
There’s more to say but I’ve been formatting and posting these pages in various ways all day as I spread them across my internet haunts and I am wiped, so I’ll just get on with sharing them. If you’re finding this through an RSS reader, be warned that the gallery won’t work! Ya gotta click through to read it easily. (Also! An accessible edition with panel by panel alt text is available here thanks to a collaboration with various folks from the Friends of the Space Gnome Discord server. Blessed be their name.)
You can read previous Hourly Comic Day installments at the following links: 2021, 2019, 2018, 2017, 2016, 2015, 2014, 2013, 2012, 2011.