I’ve become a person who says I’m going to do things and then completely fails to do them and it feels so intolerable to my sense of self.
In my support group for young caregivers we talk about the emergence of new selves from this season of our lives. How they’re unfolding in real time. How we haven’t fully met them yet, or learned what they really care about. What they’re capable of.
Past Lucy—or Portland Lucy, as I’ve been thinking of her—excelled at Doing Things, but Present Lucy isn’t up to the job. Past Lucy still says “Thanks so much for thinking of me. This sounds like a great project! I’ll get you those initial sketches by next Friday,” while Present Lucy says “Have I already taken his blood pressure this morning? How long has it been since he ate? Will I be able to sleep in my own bed tonight or are his legs still too weak to go up the stairs to his room? He needs a bath today. When did I last cut his nails? Is that the alert system going off? Oh he just got out of bed. The nurse is coming at 1pm. The phone’s ringing—oh shit it’s the lawyer. I was supposed to sign that engagement letter. What did we talk about at the appointment? I can’t remember. It’s already been a week. How long has it been since I ate? I need to change his Depends. Time to take the blood pressure again. The nurse said he shouldn’t sleep too much during the day, but the physical therapist said to be careful not to overdo it on the exertion. Should he be exercising right now? Should he be asleep right now? What’s this check I just found in my desk? Agh, there’s the package I told her I’d mail before the weekend. Last weekend? What day is it? I need to do laundry…”
(and on, and on, and on)
The friend I’ve been doing coaching work with looks at me sternly from our Zoom window. “You need to let go of the idea that you can work in an environment where you’re constantly being interrupted by a medical alert system.”
Okay, so I have to leave. Go to the studio. I’m lucky—so lucky—to have a studio. I just need to get there. To get there I need to have slept enough to get up early enough to go before he wakes up. To get there I need to get the ingredients to make the quiche to bring the food so I can stay long enough to work. To get there I need to get gas in the car to drive across town to be there on time. To get there I need to have enough executive function to put all the pieces in place, and we already know how well that’s going.
“I hope your dad’s doing better after his stint in the hospital!”
I parrot back platitudes, but I don’t know what they really mean. He’s recovering from three surgeries and adjusting to new medications and succumbing to mortality all at once.
He went in unwell and for a moment I entertained the fantasy that he’d come out better. Not cured, just improved on some level. And maybe he is. Maybe it’s hard to see beyond the fatigue and the confusion to the circulatory system beneath. The miscalibrated meds a mask for actual health improvement. But it doesn’t feel like he got better. It feels like he’s just getting worse, and we’re over here pushing so hard to try and stave off something inevitable.
Portland Lucy will be back after these messages.
(But will she?)
(And if not, who’s coming in her stead?)
